Ovarian Cancer Advocacy: Making a Difference

Ovarian Cancer Advocacy: Making a Difference

ovarian cancer advocacy

Aside from effective treatment, a strong support system is one of the most essential things needed to fight, heal, and stay positive throughout your ovarian cancer battle. That’s not limited to only friends and family–it encompasses all the support networks and resources available to patients, survivors, and caregivers.

Here, we’ve compiled a list of some of the most active and reputable organizations working on behalf of ovarian cancer patients. They provide invaluable resources you can use to navigate this new “normal,” and they do fantastic work in our communities to advance research and awareness of ovarian cancer.

National Ovarian Cancer Coalition (NOCC) 

Established in 1991, NOCC is committed to saving lives through ovarian cancer prevention and cure. They provide support for survivors and caregivers and advance ovarian cancer research. NOCC aims to educate communities about ovarian cancer symptoms and enhance awareness nationwide. 

Ovarian Cancer Research Alliance (OCRA) 

As the largest global organization dedicated to fighting ovarian cancer, OCRA focuses on research, patient support, and advocacy. They invest in innovative research, provide support programs, and advocate for ovarian cancer awareness and resources on Capitol Hill.

American Cancer Society (ACS) 

ACS strives to free the world from cancer by funding research, providing expert information, supporting cancer patients, and promoting prevention. They are a vital resource for comprehensive cancer-related guidance and support.

Patient Advocate Foundation (PAF) 

PAF case managers assist individuals with chronic conditions in resolving issues related to their diagnosis with insurers, employers, and creditors. They provide invaluable support for navigating the complexities of healthcare.

American College of Obstetricians And Gynecologists (ACOG) 

Dating back to 1951, ACOG is the premier professional organization for obstetricians and gynecologists. They offer practice guidelines and educational materials and advocate for women’s health, contributing to improving patient care and healthcare policies.

SHARE: Breast and Ovarian Cancer Support 

SHARE, a national nonprofit, empowers women affected by breast, ovarian, uterine, or metastatic breast cancer. They focus on creating a supportive community through survivor connections, ensuring that no one faces these challenges alone.

Bright Pink 

Bright Pink is dedicated to saving lives from breast and ovarian cancer by empowering women to understand their risks and manage their health proactively. They provide education for both healthcare providers and patients.

Society of Gynecologic Nurse Oncologists (SGNO) 

SGNO, a society of registered nurses and associates, focuses on advancing patient care, education, and research in gynecologic oncology and women’s healthcare. They provide a platform for nurses to stay updated on the latest advancements.


CancerCare offers free professional support services and information to help individuals manage the emotional, practical, and financial challenges of cancer.

Cancer Support Community

Committed to ensuring that “no one faces cancer alone,” the Cancer Support Community provides global support services. They conduct research and advocate for cancer patients to make their voices heard.

The Clearity Foundation 

The Clearity Foundation offers the latest information on treatment options, comprehensive tests, and clinical studies. They host an online community to provide information and support for women with ovarian cancer.

FORCE: Facing Our Risk of Cancer Empowered 

FORCE aims to improve the lives of those affected by hereditary breast, ovarian, and related cancers. They empower individuals with knowledge through information on clinical studies, research findings, and research advocates.

Foundation for Women’s Cancer 

This foundation brings together advocates, patients, caregivers, partners, and the healthcare team to eradicate or lessen the impact of gynecologic cancer through research, education, and public awareness.

Who Is NOCC, and How Can They Help You?

A united front and a compassionate support system can make all the difference in battling severe illness. For those affected by ovarian cancer, the National Ovarian Cancer Coalition (NOCC) has stood as a beacon of hope for over 30 years, offering a myriad of services and resources to patients, survivors, and their caregivers.   If you’ve been touched by ovarian cancer, NOCC is a valuable resource in your fight. Here are some of the ways they can help.  Education  NOCC understands that knowledge is a potent weapon against ovarian cancer. The coalition strives to educate both women and healthcare professionals about the risks, symptoms, and early detection of ovarian cancer. You

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Tips for Caregivers on Enhancing Communication with a Cancer Survivor

In the journey through ovarian cancer, the bond between survivors and caregivers is a source of strength and support. Open communication is the cornerstone of this relationship, offering many benefits for both parties. Let’s explore the advantages and explore some tips to enhance communication, fostering a deeper connection and understanding.  Benefits of Open Communication  Emotional support: Sharing thoughts and feelings creates a safe space where caregivers can provide comfort and reassurance, forming a foundation of emotional support. Survivors, in turn, find comfort in knowing they are understood and embraced by their caregivers.  Mutual understanding: Open communication creates a profound understanding between survivors and caregivers. Expressing perspectives, fears, and hopes builds

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The Healing Power of Ovarian Cancer Support Groups

Facing ovarian cancer can be an incredibly challenging journey, one that often feels overwhelming and isolating. In these moments, finding solace and understanding becomes paramount. Ovarian cancer support groups emerge as beacons of strength, offering a haven where patients, survivors, and caretakers alike can share experiences, lend support, and navigate the complexities of this formidable adversary together.  A Community that Understands  When the weight of a cancer diagnosis settles in, the importance of connecting with others who comprehend the nuances of the journey cannot be overstated. Ovarian cancer support groups create a space where patients can freely express fears, ask questions, and share triumphs. It’s like having a virtual hand

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How Can OCRA Make Your Life Easier?

The Ovarian Cancer Research Alliance (OCRA) has been a steadfast ally for anyone affected by ovarian cancer, combining pioneering research with unwavering support for patients, survivors, and caregivers.   No matter where you are on your ovarian cancer journey or how the disease has touched your life, OCRA can provide invaluable resources and support to make your life easier.   Paving the Way for Progress  Founded in 1994, OCRA emerged as a response to the urgent need for heightened awareness, increased research, and comprehensive support for ovarian cancer. Since its inception, OCRA has been at the forefront of the fight against this formidable disease, steering efforts toward breakthroughs in research, patient advocacy,

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